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Default 05-31-2008, 10:53 PM

I have a sister-in-law who has it and she just stays in bed, which I think is probably a bad thing to do.

My suggestion would be to remain as active as you can without hurting yourself. If you can do the water therapy it would probably be a good low-impact way to exercise. If someone can help you with the more painful daily chores, that would be a good thing.

Hope you get better soon!
   
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Default 06-04-2008, 10:53 PM

I won't go into my aches and pains which I'm sure are nothing compared to what you must endure. I think anything you can do to keep yourself going is a definite yes. What ever it is start slow and easy because you don't want to overdo. I'm with Dallas when it comes to Yoga- the stretching helps my body more than anything and I like the fact of slow and easy deep breathing and I am not far from a warm bubble bath when I am done. You have my sympathy and all my good thoughts that you are soon to feel well again.
   
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Default 06-07-2008, 10:53 PM

Lyrica for Fibromyalgia Treatment

Fibromyalgia is a perplexing and often debilitating disorder, but treatment can help. Lyrica, a medicine commonly used to treat patients with seizures, pain from shingles, and nerve pain from diabetes, is offering new hope to those living with the pain of fibromyalgia. Here is what you need to know about the use of Lyrica to manage fibromyalgia, from the drug's benefits to its side effects.

Less Pain, More Energy: See Fibromyalgia-Friendly Exercises

What Is Lyrica?
Lyrica (pregabalin) is an FDA-approved drug treatment for fibromyalgia. Fibromyalgia is a chronic disorder that causes long-term, widespread muscle pain and tenderness, trouble sleeping, and overwhelming tiredness.

Lyrica is a drug that targets nerve signals. The medicine has long been used to relieve nerve pain in patients with shingles and diabetic neuropathy. It is also used to treat partial seizures.

How Does Lyrica Work?

Scientists aren't exactly sure how Lyrica makes some people with fibromyalgia feel better. Fibromyalgia pain is believed to be brought on by nerve-related changes, which cause nerve cells to fire off too many signals. This renders a person overly sensitive to stimuli that are normally not painful.

Animal research suggests Lyrica helps decrease the number of nerve signals, and as a result calms down overly sensitive nerve cells. This appears to improve pain in patients with fibromyalgia.

I learned this only a year later, when I had had post herpetic neuropathy (shingles). "Back when" I used regular pain meds and moist heat. Lyrica is used for both conditions. With the neuropathy (lots of itching..enough to drive one nuts...was helped a lot). Yet, I found when I had another bout, either from the neuropathy or a mushrrom allergy...Zyrtec worked like a wonder, and with no side effects. This might be worth a try.

Bottom LIne:

Moist heat, keep movement, as much as possible.
Lyrica will probably work great (but possible side-effects, such as loss of libido). Requires an Rx.
I would try Zyertec (relatively strong antihistamine, no side-effects)...and cheaper than Lyrica.
Lots of emotinal nourishment, and rest. Hot bath-soaks, and out of a high-stress environment.
   
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Default 06-12-2008, 10:53 PM

Dear Tori,
It really pains to hear the illness you are going through and the pain you're experiencing. I can understand how much it is tough to live in this way. I have noticed your absence but I hope for the best. My prayers are for you and I wish you the very best. I am confident you will recover and entertain your friends/contacts as you did in the past. Again I pray almighty for your good health and early recovery.
   
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Default 06-15-2008, 10:53 PM

I help people overcome fibromyalgia every month, and I can tell you that there is no magic bullet, or secret herb that does the trick. What does help people eliminate fibromyalgia is a thorough investigation into the metabolic state of the body, and a precise and comprehensive functional neurologic exam.
Fibromyalgia will affect your whole body. The endocrine, immune, gastrointestinal, cardiovascular and nervous system will all be dysfunctional to one degree or another. All of those systems need to be evaluated and seen in context of how they are functioning compared to the others.
In general, if you can identify the specific brain areas involved (and research is showing more and more that fibromyalgia is a brain disorder) you can direct therapies to strengthen those areas and increase their function. If you are successful in doing so, the brain will be able to regulate the other systems better on its own. However, supporting the other systems with proper diet and or supplementation will also be important.
As you can see, it's not as simple as taking a pill. If it was, there wouldn't be millions of people still suffering. I would encourage you to seek the help of a knowledgable practitioner. Specifically a functional neurologist who is well versed in metabolic, gene, immune and endocrine panels. If you need to find someone in your area, you can look at lifechangingcare.com.
Beating fibromyalgia is a gradual process that might take 6-8 months or more. But with a carefully designed and comprehensive plan of attack, you should be able to make huge improvements so that you can get the most out of the years to come.
   
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Default 06-20-2008, 10:53 PM

My aunt went Thur rough problems like that for the past 27 years. This almost drove her to death. She went to new zeal and and was introduced to an all new product called Kyani. She took this product for about two weeks and all her serious pains in her head as well as allergies, arthritis, and many types of inflammation through out her body is all gone. I see her now and I'm amazed on how she looks and how she is happy. I am now taking this product and my asthma is slowly going away. This stuff works and its all pure. This company only has three products and my best advice is to get all 3 products. My month supply of all 3 pr ducts is around 120 if you have a membership with the company. without a membership its about 12 dollars more. If u wanna get better get this. here is an ID# 283378 to order if u dint want to get a membership which is like 47.00.
Dont take my word for it. If you want to get better.... you should try it for itself. It is working for me now.

contradicts.com ( Kyani sunrise, Kyani sunset and Kyani Nitr FX)
   
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Default 06-21-2008, 10:53 PM

My ex-wife has fibril and has just switched to Lyrica, but I've also heard Zyrtec helps a little too (non-Rx) and U save on the costs of medicine that way. If U have medical insurance which covers the costs go with a Dr's prescribed Lyrica Rx and get the best results (U get what U pay for really). :-)

If U smoke, or drink decaffeinated beverages - STOP ... I know it's hard, but your body will thank you for it sooner rather than later. The caffeine & nicotine help kick in the fibril & sometimes intensify it, rather than what most people use them for (self-medication).

All the best to U in this now & the future!!!

BTW, in case U didn't know what I meant by Rx = prescription (sorry, writing in shorthand I guess)
   
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Default 06-24-2008, 10:53 PM

I have Fibromyalgia -Vitamin D3 supplementation has cleared the constant muscle pain. I did high levels for 3 weeks & was pain free. I knocked the dose down to 2000Au's a day & a week later the pain was back. After restarting high levels, the pain is managed again after 3 days.

I personally did 35,000IOU per day for 2 months trying to refill my stores. It is highly recommended that you have your Vita.D levels tested but my research shows toxicity only at outrageous, long term levels.

I originally did B12 injections daily for a couple of years & then I tried givensnesings.Amand's protocol) for 10 years but discovered Vita.D3 supplementation last year & that has worked better than anything else!

Vitamin D3 is not a vitamin at all but a necessary hormone that effects the immune system, bones & nearly every aspect of health. Having low Vitamin D levels greatly increases risk of cancer, heart disease, diabetes, MS & being deficient can create or greatly exacerbate health problems. Many researchers claim that optimized vitamin D levels are more effective than a flu shot in preventing viral infections.

The prescription vitamin D supplements are the wrong type (exclusivelyrILl As warned by the National Institute of Health -

http://www.ncbi.nlm.nih.gov/pubmed/17023693

Luckily you can buy vitamin D3 (cholecalciferol) over the counter and the upper limits are extremely high. Current recommendations from researchers are for 35iu per pound - a 150# person needs minimum of 5250iu per day & the rda is 400iu. This amount is for minimal needs and does not account for depleted stores. March is when stores are at their lowest.

Vitamin D3 deficiency is becoming an epidemic. U.S. RDA are much too low. It is possible that upper atmosphere pollution is blocking the needed UVB light from the sun.

I also highly recommend a low carb way of eating to allow the body to regenerate rather than degenerate.


Vitamin D deficiency may contribute to the wide set of disorders associated with metabolic syndrome (syndrome X), as well as to PCOS. In a study published in 2004, the authors saw a 60% improvement in insulin sensitivity in healthy, vitamin D replete adults

http://www.womentowomen.com/healthynutrition/vitamind.aspx

In northern latitudes (above that of Atlanta, Georgia) the sun is at too low an angle for half the year to provide sufficient UV radiation. Most people need to take vitamin D, especially seniors, as the ability to synthesize vitamin D in the skin declines with age.

With exposure to sunlight in the summer, the body can generate between 10,000 IU and 20,000 IU of vitamin D per hour with no ill effects. In addition, no adverse effects have been seen with supplemental vitamin D intakes up to 10,000 IU daily.

Always take your vitamin D with a fat-containing meal to ensure absorption.

http://www.drweil.com/drw/u/QAA400676/More-Vitamin-D.html

Dr. Joe Prendergast, an endocrinologist /diabetologist has managed over 1500 diabetic patients and, in the last decade, not one of his patients has had a stroke or heart attack. Only one has even been hospitalized! His secret?50,000 units of Vitamin D3 daily. Dr. Joe further reports:

* Reversal of advanced coronary disease
* Reversal of advanced lung disease
* Cure of multiple sclerosis
* Cure of amotrophic lateral sclerosis
* Regression of rheumatoid arthritis
* Improvement in allergies
* Control of many cancers
* Reversal of osteoporosis
* Prevention of influenza
* Cure of depression & other mental disorders
* Hashimoto?s hyperthyroidism

In summary, the evidence for safety and remarkable efficacy of Vitamin D3 suggests that virtually ALL adults should probably take 50,000 units of D3 daily. This is certainly true for those with virtually any illness.

http://enews.endocrinemetabolic.com/2008/05/vitamin-dthe-cure-for-many-diseases.html
   
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Default 06-27-2008, 10:53 PM

Currently, I'm taking a few pain medicines or a prescription from my doctor. There are only three that are good for fibromyalgia so far and each one has it's own side effects. Two of them can cause weight gain and one doesn't. Lyrica is a big one right now, but it's not that good for everyone. My sister took it and not only did she not like it, but it also caused weight gain. Which, when you have fibromyalgia and you're young, weight gain is NOT something you want. I currently take Savella, which isn't bad, but it has some really strange side effects. You can speak with your doctor and see if you can try a drug out for three months and see how you feel with it.

You can also see about some prescription pain medicines or just over the counter pain meds as well. My sister found that taking pain meds every day before she starts work helps her day out a bit.

What I've also heard that was good was yoga. I have a friend that's been doing that and it's been helping her out so far. It doesn't stress you out to much and it's good to stretch those muscles out a bit.

Also, if you just get up and do something different every few minutes, it helps the muscles not feel so stiff. Like, every 15 minutes do the opposite of what you're doing now. If you're sitting, stand up and walk around. If you're walking, sit down. Granted, you can't do that all the time-esp when you're driving, but movement does help.

And, if you can take it, massage helps. I personally can't take anyone touching me, but sometimes that might help.

ooh, yes-just read your additional details-water therapy DOES help a lot. Something about being in the water and moving around helps your body out. I think that's why you see all these older people doing water exercises. I have a pool myself and whenever I can, I do get in there and just move around. It's relaxing and helps you out.
   
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