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To anyone with fibromyalgia :?
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Heather F's Avatar
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Default To anyone with fibromyalgia :? - 09-25-2008, 11:06 PM

This isn't spam I swear.
I was diagnosed four years ago, and I just switched doctors. I was tested for thyroid and vitamin imbalances, and it turns out that was the problem!!!! I was told by my doctor that thyroid diseases can mimic fibromyalgia to a T, which I never knew. If you have fibromyalgia, I urge you to request a thyroid panel from your doctor. Its just a blood test. Today I took my first thyroid supplement and for the first time in four years, I feel better. I noticed the difference in half an hour. I feel awake and alive and less pain and no fatigue! Its really worth it. Thanks for reading, I just wanted to help anyone that I can, because I know this has been such a huge strugle for me and many others.
Much luck!
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Default 09-29-2008, 11:06 PM

I already know about that..and the other doctor committed malpractice if he didn't test you before he diagnosed FMS-it is always possible it was a false negative---do you have copies of any testing that was done?

I've been tested periodically over the last 10 years.

its good that you understand that you did not have FMS to begin with...there was a doctor on Oprah treating people for a hormonal imbalance and claiming her was curing FMS..but DUH--those people did not have FMS

there is a women who repeatedly posts here saying Vit D3 cleared up her FMS symptoms..she refuses to accept that the D3 cleared up a vitamin issue that was undiagnosed...if she should actually have FMS, it is very mild and NOT affect by the prove her wrong, I have been taking D3, I have not noticed a change, in fact yesterday I was in severe pain....I don't plan to continue it much longer as she recommends VERY high doses (max should be 4000) that could be toxic over a long period of time.

another women used to claim she cured FMS by managing body acid--i tested myself and no surprise--my levels were in normal range..she refuses to realize that she does not have FMS,but has an issue with body acid that mimic ed FMS

and there are many of these cures that actually treat something other than FMS
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Default 10-01-2008, 11:06 PM

It sounds like you were misdiagnosed. Anyone who actually has fibromyalgia won't respond like you did to treatment. I don't think you ever had Fibromyalgia

I have been diagnosed with Fibromyalgia, my thyroid was normal and so were all my other vitamins and minerals after getting my Celiac Disease under control. Since then my symptoms have no improved.

EDIT- I agree with JUSTMEINTHEWORLD. If you are deficient in a mineral or vitamin and then you take a supplement and you feel better, your symptoms WERE NOT FIBROMYALGIA. I've been deficient in vitamins and minerals, I got my levels up and my symptoms are still there.

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Default 10-04-2008, 11:06 PM

Unfortunately for most of us the thyroid lab tests show as "normal" when it's OBVIOUS thyroid hormone dysfunction. Some doctors (that write books) claim that normal lab tests but obvious thyroid dysfunction is usually caused by "thyroid resistance" but no local doctor would give thyroid hormones for someone with "normal" test results.

Glad you found an answer!!

I have Fibromyalgia -Vitamin D3 supplementation has cleared the constant muscle pain but none of the other symptoms. I did high levels for 3 weeks & was pain free. I knocked the dose down to 2000Au's a day & a week later the pain was back. After restarting high levels, the pain is managed again after 3 days.

I personally did 35,000IOU per day for 2 months trying to refill my stores. It is highly recommended that you have your Vita.D levels tested but my research shows toxicity only at outrageous, long term levels.

I originally did B12 injections daily for a couple of years & then I tried givensnesings.Amand's protocol) for 10 years but discovered Vita.D3 supplementation last year & that has worked better than anything else!

Vitamin D3 is not a vitamin at all but a necessary hormone that effects the immune system, bones & nearly every aspect of health. Having low Vitamin D levels greatly increases risk of cancer, heart disease, diabetes, MS & being deficient can create or greatly exacerbate health problems. Many researchers claim that optimized vitamin D levels are more effective than a flu shot in preventing viral infections.

With Vitamin D3 deficiency becoming an epidemic, it is possible that upper atmosphere pollution is blocking the needed UVB light from the sun. Or simply that people are washing daily, if you wash skin exposed to the sun within 48 hours, you wash off the oils where the vitamin D production starts. In northern latitudes (above that of Atlanta, Georgia) the sun is at too low an angle for half the year to provide sufficient UV radiation. If even available, UVB rays are only accessible while the sun is directly overhead. Most people need to take vitamin D, especially seniors, as the ability to synthesize vitamin D in the skin declines with age.

With exposure to sunlight in the summer, the body can generate up to 20,000IOU of vitamin D per hour with no ill effects. In addition, no adverse effects have been seen with supplemental vitamin D intakes up to 10,000 IU daily.

Always take your vitamin D with a fat-containing meal to ensure absorption.

The prescription vitamin D supplements are the wrong type (ergocalciferol ). As warned by the National Institute of Health -

Luckily you can buy vitamin D3 (cholecalciferol) over the counter and the upper limits are extremely high. U.S. RDA are much too low. Current recommendations from researchers are for 35iu per pound - a 150# person needs minimum of 5250iu per day & the rda is 400iu. This amount is for minimal needs and does not replenish depleted stores.

I also highly recommend a low carb way of eating to allow the body to regenerate rather than degenerate.

Vitamin D deficiency may contribute to the wide set of disorders associated with metabolic syndrome (syndrome X), as well as to PCOS. In a study published in 2004, the authors saw a 60% improvement in insulin sensitivity in healthy, vitamin D replete adults

Dr. Joe Prendergast, an endocrinologist /diabetologist has managed over 1500 diabetic patients and, in the last decade, not one of his patients has had a stroke or heart attack. Only one has even been hospitalized! His secret?50,000 units of Vitamin D3 daily. Dr. Joe further reports:

* Reversal of advanced coronary disease
* Reversal of advanced lung disease
* Cure of multiple sclerosis
* Cure of amotrophic lateral sclerosis
* Regression of rheumatoid arthritis
* Improvement in allergies
* Control of many cancers
* Reversal of osteoporosis
* Prevention of influenza
* Cure of depression & other mental disorders
* Hashimoto?s hyperthyroidism

In summary, the evidence for safety and remarkable efficacy of Vitamin D3 suggests that virtually ALL adults should probably take 50,000 units of D3 daily. This is certainly true for those with virtually any illness.
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Default 10-07-2008, 11:06 PM

Thanks for sharing that information. My doctor tested me for thyroid diseases before confirming my diagnosis of fibromyalgia and apparently I don't have a thyroid problem.

It took me over a decade to get a proper diagnosis though. I had been dealing with painful symptoms for years without ever getting any help or a diagnosis from doctors, so I started reading up on things on my own and found out about fibromyalgia. However, when I asked my GP whether I might have it he immediately dismissed that possibility without even examining me, doing any tests or sending me to a specialist, and at the time patients couldn't see specialists without being referred by their GP. Having tried to find out the cause of my symptoms for years, I got fed up with doctors and stopped trying to get a professional diagnosis and instead just tried to figure things out on my own. Recently (11 years after I first asked my doctor about the possibility of fibromyalgia) I decided to give things another try. This time I could go straight to a rheumatologist instead of a GP because the system here has been changed and a reference from a GP is no longer necessary. The rheumatologist immediately suspected fibromyalgia and Sjogren's and ordered a blood test and eye test to confirm that. I had a confirmed dual diagnosis from him in a matter of one week.

It's a real shame how many doctors can't seem to do their job properly.

It's good to hear that you're doing better now.
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