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Reflex Sympathetic Dystrophy / Complex Regional Pain Syndrome?
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Default Reflex Sympathetic Dystrophy / Complex Regional Pain Syndrome? - 12-17-2008, 09:59 PM

Does anybody else out there have this condition?
   
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Default 12-23-2008, 12:40 AM

I do...but I am sure you already figured that out....lol I guess not many people have this....Thank you so much for your input on my question!!! I have gone to the websites...
   
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Default 12-24-2008, 06:39 AM

I just found out a week ago that I have RSD. I broke my 3rd metatarsil in both feet over 10 weeks ago and have been in a"boot"on my left foot. I have been in horrible pain all along and my DR finally sent me in for bone scans which showed RSD. I am now taking 300mg of Nurotin and some low dose pain meds. I am scared and feel alone in this. I cant walk because the RSD is not letting my break in the left footheal. I do go in for E stem therapy on both legs 3 times a week wich is painful. I dont know what to do. I am so confused about this. I have 4 kids and am married. It is effecting everyone right now. I cant just get up and haul kids, stand and make dinner or do laundry with out my feet feeling like they are on fire and I am getting needles shoved all over my feet and legs.So that is my story, I hope it helps you...C
   
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Default 12-27-2008, 05:41 AM

Unfortunately yes. Left arm, both legs and possibly right side of abdomen. Good luck to all.250 mg's Lyrica 8 mg's zanaflex and 10 sympathetic nerve blocks and looking forward to the spinal cord stimulator.
   
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Default 01-01-2009, 09:29 PM

Yes I also have this condition. Both Arms, hands, and shoulders. Very disabling injury. At max dosage of Lyrica, which helped alot for the last 2 years 600 mg/day. Also amytriptyline 25 mg, and imovane to help to sleep. I was just recently diagnosed with this condition, and once you look into it, well it all makes sense. The biggest challenge of all is to have Doctors to actualy listen to what you are saying to them about your symptoms. Most Doctors have a pre diagnosis before they see you, and or not realy pay attention. Frustrating to say the least.
   
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Default 01-07-2009, 08:03 PM

I do, but I went into intensive (physical) therapy. Now I am much better. All I can say is I hope you all feel better cause I know how it feels and it is not fun to be the person that has to deal with this pain. It will get better just keep on going to different doctors until you find the problem or until you get better! Thats what I did- I went through about 6 or 7 different doctors before I found the one that diagosed me with RSD.Hope you ALL feel better!!If you need anything just email me.
   
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