Are there any sponsors that would help children with rare disorders? Please help? -
12-27-2008, 07:22 AM
My little sister is diagnosed with GTP Cyclohydrolase, PKU, and Segawa's Dystonia.Seeing as these are all degenerative and GTP is known as pretty rare, I am asking about sponsors that can help my family.I mean, anyone who knows about these disorders (especially GTP) would know that food ALONE is very pricey.I'm talking almost $40 for four boxes of special flour that are less than a pound. That's a week of groceries for some people!Also, special tools like a training walker and leg braces. She can't go outside much to walk without these.So yeah, does anyone know any organizations/sponsors that would help her?Please let me know! Thanks!@ Answerer1: Haha, sorry, when I said GTP I just was shortening the disorder GTP Cyclohydrolase which deals with the GTP (evidently). Thanks for your input, also!
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