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Can someone tell me about fibromyalgia from a personl point of view not a medical?
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Default Can someone tell me about fibromyalgia from a personl point of view not a medical? - 10-12-2008, 09:29 PM

I would like to know what it is like, I have depression, anxiety, always hurting, my low back on both sides in the small of the back and the upper part of the back of my neck is the worse. Forget about trying to get a message it hurts way to much. I have horrible stomach cramps with diarrhea. Does any of this sound familiar? I don't want to got to my doc and have them tell me to buck up and deal with it. Any info you can share would be great.

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Default 10-15-2008, 09:29 PM

Hello. What you are describing does not sound like Fibromyalgia. It doesn't cause stomach cramps, and diarrhea. It's pain in your joints ( knees, elbows, wrists, shoulders, etc ), and in your muscles. My knees will hurt so bad some days, i can't walk up and down the stairs in my house, My arms will get so sore, i can't lift the milk out of the fridge. I can't drive a car sometimes, because of the pain. That is what Fibromyalgia is like. I think there is definitely something going on with you, but it doesn't sound like Fibromyalgia. The pain i feel gets so bad, it brings me to tears sometimes. So consider yourself lucky if indeed that's not what you have. Take care.
   
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Default 10-16-2008, 09:29 PM

this can jut be the effects of the depression and anxiety...if it were FMS there would be pain in your limbs too...but even pain in the limbs can be from depression..

it possible its a problem specifically with your back...maybe tense muscles....

it is reported that many people with famished IBS......but that cannot be confirmed due to the high rate of misdiagnosis by incompetent docs who think it is a general label for pain


FMS IS NOT a vitamin deficiency..


if your symptoms are cleared with a vitamin supplement--that you did NOT Have FMs--you had a vitamin deficiency..

just to prove it--i have started taking D-3 and there is NO change yet

the recommended max is 4000/day with 600 minimum

my FMS started when i was out in the sun all day most days......
   
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Default 10-19-2008, 09:29 PM

Fibromyalgia tend to have pain without reason. In other words, you didn't do anything to make it hurt. My kids know that if they play with me they can't touch my legs. If I brush against something I will get shooting pain. If I lay down to sleep, the bed hurts my shoulders, arms, legs, and hips. I have a water bed but the water is too hard. Sleep is hard because laying down hurts (so does sitting up). You sound like there is something wrong in your abdomen.
   
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Default 10-23-2008, 09:29 PM

I have Fibromyalgia -Vitamin D3 supplementation has cleared the constant muscle pain. I did high levels for 3 weeks & was pain free. I knocked the dose down to 2000Au's a day & a week later the pain was back. After restarting high levels, the pain is managed again after 3 days.

I personally did 35,000IOU per day for 2 months trying to refill my stores. It is highly recommended that you have your Vita.D levels tested but my research shows toxicity only at outrageous, long term levels.

I originally did B12 injections daily for a couple of years & then I tried givensnesings.Amand's protocol) for 10 years but discovered Vita.D3 supplementation last year & that has worked better than anything else!

Vitamin D3 is not a vitamin at all but a necessary hormone that effects the immune system & nearly every aspect of health. Having low Vitamin D levels greatly increases risk of cancer, heart disease, diabetes, MS & being deficient can create or greatly exacerbate health problems. Many researchers claim that optimized vitamin D levels are more effective than a flu shot in preventing viral infections.

The prescription vitamin D supplements are the wrong type (exclusivelyrILl As warned by the National Institute of Health -

http://www.ncbi.nlm.nih.gov/pubmed/17023693

Luckily you can buy vitamin D3 (cholecalciferol) over the counter and the upper limits are extremely high. Current recommendations from researchers are for 35iu per pound - a 150# person needs minimum of 5250iu per day & the rda is 400iu. This amount is for minimal needs and does not account for depleted stores. March is when stores are at their lowest.

Vitamin D3 deficiency is becoming an epidemic. U.S. RDA are much too low. It is possible that upper atmosphere pollution is blocking the needed UVB light from the sun.

I also highly recommend a low carb way of eating to allow the body to regenerate rather than degenerate.


http://curezone.com/forums/fm.asp?i=1560518#i
http://articles.mercola.com/sites/articles/archive/2009/10/10/Vitamin-D-Experts-Reveal-the-Truth.aspx

Your vitamin D level should never be below 32 ng/ml, and any levels below 20 ng/ml are considered serious deficiency states, increasing your risk of as many as 16 different cancers and autoimmune diseases like multiple sclerosis and rheumatoid arthritis, just to name a few.


They found that the body does not reliably begin storing cholecalciferol in fat and muscle tissue until 25(OH)D levels get above 50 ng/ml (125 nmol/L). That is, at levels below 50 ng/ml (125 nmol/L), the body uses up vitamin D as fast as you can make it, or take it, indicating chronic substrate starvation?not a good thing. 25(OH)D levels should be between 50?80 ng/ml (125?200 nmol/L), year-round.

25(OH)D test level - between 50?80 ng/ml (125?200 nmol/L), summer and winter

http://www.vitamindcouncil.org/health/deficiency/am-i-vitamin-d-deficient.shtml

Vitamin D deficiency may contribute to the wide set of disorders associated with metabolic syndrome (syndrome X), as well as to PCOS. In a study published in 2004, the authors saw a 60% improvement in insulin sensitivity in healthy, vitamin D replete adults

http://www.womentowomen.com/healthynutrition/vitamind.aspx

In northern latitudes (above that of Atlanta, Georgia) the sun is at too low an angle for half the year to provide sufficient UV radiation. Most people need to take vitamin D, especially seniors, as the ability to synthesize vitamin D in the skin declines with age.

With exposure to sunlight in the summer, the body can generate between 10,000 IU and 20,000 IU of vitamin D per hour with no ill effects. In addition, no adverse effects have been seen with supplemental vitamin D intakes up to 10,000 IU daily.

Always take your vitamin D with a fat-containing meal to ensure absorption.

http://www.drweil.com/drw/u/QAA400676/More-Vitamin-D.html

Dr. Joe Prendergast, an endocrinologist /diabetologist has managed over 1500 diabetic patients and, in the last decade, not one of his patients has had a stroke or heart attack. Only one has even been hospitalized! His secret?50,000 units of Vitamin D3 daily. Dr. Joe further reports:

* Reversal of advanced coronary disease
* Reversal of advanced lung disease
* Cure of multiple sclerosis
* Cure of amotrophic lateral sclerosis
* Regression of rheumatoid arthritis
* Improvement in allergies
* Control of many cancers
* Reversal of osteoporosis
* Prevention of influenza
* Cure of depression & other mental disorders
* Hashimoto?s hyperthyroidism

In summary, the evidence for safety and remarkable efficacy of Vitamin D3 suggests that virtually ALL adults should probably take 50,000 units of D3 daily. This is certainly true for those with virtually any illness.

http://enews.endocrinemetabolic.com/2008/05/vitamin-dthe-cure-for-many-diseases.html
   
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Default 10-27-2008, 09:29 PM

It does sound like you might have it. Basically, FMS is chronic pain and chronic fatigue. Pain everywhere. Depression and anxiety are common as well. To someone who has no idea what FMS is, I mention it's like arthritis, only pain in the muscles, not the joints. And you're always in pain and always tired.

There are a few other things that are linked with fibromyalgia that you can get, such as IBS, which would explain the stomach cramps with diarrhea. And arthritis. And well... everything it seems like. XD (To the first person who commented about the stomach problems not being a part of FMS, it can be. Not always with everyone, but it can happen. I know people who have both FMS and IBS.)

FMS is not a vitamin deficiency and whoever says that doesn't know what they're talking about. More vitamins doesn't help you feel any better or worse with FMS. FMS affects the muscles. Not your lack of vitamins.

I'm including a few links that might help you understand what FMS is. What symptoms are, what else can happen with it, etc. Basically, it sucks, you have a ton of pain-even more with the changes of weather, you get depressed, you lose sleep, you can get other things as well. All in all, it's not a fun disease. Even more since there's no real cause or cure for it. Some doctors don't even believe that it's real.
   
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