Has anyone heard of Fibromyalgia?

*dream weaver* · **Has anyone heard of Fibromyalgia? -** 03-22-2010, 05:35 AM

I suffer deeply with fibromyalgia, and I'm always in pain.
I also have other complication from the firo. I feel that it's taking over my life. My back is the worst I am in deep pain constantly and I tend to swell all over. I even have TMJ from it. Does anyone have any ideas how to cope with such a deases? I heard it has to do with your mucsles.

propane · 03-23-2010, 05:35 AM

Visit Viki and read "Treatment" section:

legalizeandrealize · 03-26-2010, 05:35 AM

Yes, my mom has it. The doctors have her on medications to help with the pain and other symptoms.

Beauty · 03-31-2010, 05:35 AM

i feel for you my wife has it and right now she copes with it by taking Advil when she starts to feel it coming on...best of luck to you

bamahotT · 04-02-2010, 05:35 AM

My mother is a sufferer too. I listen to 800am radio at 10pm eastern time. And they have allot of advise on there. I heard Iodine works wonders!!!

r_e_a_l_miles · 04-07-2010, 05:35 AM

Wow I'm really sorry to hear about that, my father had it and for around 6 years after injuring his back, it was really hard on him.

The best thing you can do though is little amounts of exercises to help muscle growth and run a little, increase that each day and it will help.

And the specialist said that eating healthier is definitely something you have to do.

Then there are herbal supplement that help, and you can buy human growth hormone which seems to help a lot too.

I'm sorry and I hope you get better soon.

newtex · 04-09-2010, 05:35 AM

ABSOLUTELY! I have it as well. Join this yahoo group it is great and you can get lots of advice from people who are in the group, lupus etc, look for it under yahoo health groups. also mine is laughter medicine for the spirit and It is a yahoo group as well. You can find lots of info on FMS at webbed.com as well. email me at ally_nwm@yahoo.com and I will send you helpful articles and such if you like.

merrittjl · 04-14-2010, 05:35 AM

I will begin by telling you I don't know much about fibromyalgia, but I did some research on the internet and here's some info I found :

"Search out the trigger point areas using a massage tool. An important point to note is that where your body hurts the most may not be the source of the pain. In my case my neck and jaw hurt the most, but my trigger points were located under my arms pits and in my legs, especially my thighs.

Moist heat is helpful for relaxing muscles. Warm showers worked well for me.

Apply counter pressure to the trigger points to loosen them up. For myself and both of my sons, who also have problems with tight muscles, this technique works amazingly well.

The Trigger Point Therapy Workbook Your Self-Treatment Guide for Pain Relief by Clair Davies.

For acute pain from fibromyalgia, the best short term treatment I found for immediate relief was in the trigger pont therapy. The variation of the steps I used from this book were:

Follow the counter pressure session with a stretching / gentle yoga session to relax and lengthen tight muscles. If yoga or any other exercise hurts, I found it is better to skip it. Before I found a PT who really helped me, I had other physical therapists tell me to "work through the pain". Those were not the PTs who ever helped me - they just made me worse. Pain is your body's way of telling you "that hurts - don't do that". I found that pain during exercise just led to more pain.

One great piece of advice I did get from a physical therapist was that whatever you do today will determine your pain level tomorrow. For me, I have found this to be true. If I spend a day eating a lot of junk food, working on the computer and not doing my fibromyalgia treatment routine, then I pay for it by being sore the next day. However, if I spend a day eating high magnesium, whole foods made from scratch combined with lots of stretching, yoga and trigger point therapy, then the next day I feel pretty good.

How to tell if the steps are working - I've experimented by just doing my treatment sessions on only one leg and then taking a walk around the block. It's amazing how much more relaxed the leg that has had the trigger point therapy and stretches feels. It's no wonder that people with fibromyalgia also often have Chronic Fatigue syndrome. When your muscles are really tight, it takes much more effort to move them. I didn't realize just how tight my muscles were most of my life until I found these ways to get them loosened up.

For longer term pain solutions I had to balance my muscles better and improve my body alignment. I also had to change my diet to provide my body with more of the nutrients responsible for relaxing muscles after a contraction. Without the right biochemical triggers, contracted muscles are unable to relax and will stay in a contracted state for a very long time. For more on this topic, see my section on Fibromyalgia Diet."

Hope I helped somewhat, good luck,
-Sarah-

Gummy Worm · 04-16-2010, 05:35 AM

Ive heard of that.I know three people that have it ,until someone stops paying there bills.You want to know pain try changing tires and brakes on big trucks.Its probably a symptom of not doing anything at all.

MomBear · 04-19-2010, 05:35 AM

I'm sorry to hear about your suffering. My aunt also has fibromyalgia. We aren't close so I don't know how she copes. I live near Atlanta and hear on the radio about a place who helps specifically with fibromyalgia patients. They have a team of doctors, nurses, nutritionist, etc to help find the cause and help find the answer. The name is Progressive Medical. Maybe there is a similar facility in your town. God Bless.