i feel your pain
i honestly don't know.i think my mum had it around 6 years and she started getting better, she's pretty good now.Whereas I've had it for around 5 years I think, with no signs of improving.I think once it passes a certain mark with no signs of improving you're pretty much stuck.But hey they are making medical advances in the field all the time - hopefully soon they'll have something to cure it!and NO it isn't all just in your mind, for people who have said or are going to say that.just take each day as it comes and i hope you feel much much better soon